Jim Daniele

My name is Jim Daniele, and I am 70 years old. Born and raised in Burbank, California, I worked in the aircraft industry until retirement. I was diagnosed with ALS in January, 2013 after experiencing weakness in my legs and arms for two years prior. I have become completely dependent on my girlfriend for all my needs, and am almost completely paralyzed from the neck down, but feel lucky I still have a little movement in my legs and right arm. This disease has completely changed the active lifestyle we once enjoyed, since I was an avid bicycle rider, camper and fisherman. When I began falling off the bike, I had to give it up. Even the simple things we take for granted, like drinking a glass of water, or making a phone call are gone. It is hard to feel that everything I would like or need to do requires me to ask someone else to stop what they are doing and help me. Despite my disease, I still try to enjoy myself. My electric wheelchair allows me to get out to see movies or visit the harbor. I appreciate the time spent with family and enjoy my granddaughters, as they help me and cuddle with me. Physically I am limited, but I am blessed to still remember all the good times I have had.